That’s the case since the life -saving infusion, Adin: He’s been in control

It is amazing that the time is running: it has not been a year since Kneifel Ádin in Debrecen has received a life infusion in Dubai, and the family has returned to the United Arab Emirates for the first control test these days. The little boy was diagnosed with Duchenne muscle dystrophy at the age of 2, and in Hungary he is the first child to receive the expensive gene therapy of HUF 1.3 billion.

• Ádin Kneifel received life -saving gene therapy in Dubai at the age of 3.5

• The first control test was returned in May with positive results

• According to experts, Adin is in the best condition between treated children

– We traveled to Dubai on Saturday, the road was 5 and a half hours, so we rested on Sunday and the investigations began on Monday. That day we consulted with Ádin’s doctor, then followed a physiotherapy, and in the afternoon we went back to a heart culture and a blood test, said the child’s mother, Anikó Krucsó. – All tests went well, many praised Adin. Half -foot jumping alone doesn’t go for him, but we hope he’ll never have a bigger problem.

Ádin was the third child to receive gene therapy at the Dubai institution, and are now at the seventh.

– we asked the professionals what they saw on last year, and without exception, each of them said that Adin was in the best condition. And your doctor asked you to see it once every year. But that’s okay. We keep in touch with the doctors regularly, and it was a fantastic feeling that every test was welcomed my son as if he had only gone home two weeks ago, the mother added. – It is very reassuring that so nice and child -centric people are supervised. We are sorry that we only meet once a year, but we know we are here, whatever we have. Adin was 3.5 years old last May and received the infusion in July. We were fortunate enough to get together so early, as he was in very good condition compared to the disease, without a spectacular symptom.

Although Adin runs a little slower and stairs, does not jump as high, they are constantly practicing to develop. Small group kindergarten, very cheerful and willful. What would have happened if the treatment hadn’t come together, it’s hard to say, because it depends on a lot. The Duchenne semesima with muscle dystrophy is a hereditary disease that results in the gradual destruction of muscle cells. In this case, the location of muscle cells is filled with muscle -incapable adipose tissue and connective tissue, resulting in the sick child becoming increasingly weak. They are forced to be wheelchairs by the age of ten, and within a few years the disease extends to heart and respiratory muscles. Duchenne patients live only about twenty years.

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